Caring for someone with dementia requires patience, understanding, and specialized knowledge. Dementia experts, with years of experience and research, understand the intricacies of the condition and the needs of those living with it. There are certain practices they consciously avoid to ensure the well-being and dignity of the person they are supporting. Here are seven things dementia experts would never, ever do:
1. Dismiss Behavior as “Just Part of the Disease”
While dementia can cause changes in behavior, experts know that every action has a cause. Sudden agitation or aggression could stem from discomfort, fear, hunger, or even an environment that’s too noisy or overstimulating. Instead of dismissing the behavior, they investigate the root cause and address it with compassion and problem-solving.
2. Argue or Try to Correct Someone’s Memory
When a person with dementia recalls events incorrectly or confuses timelines, experts avoid saying, “That’s not what happened” or “You’re wrong.” Correcting them can lead to frustration, embarrassment, or agitation. Instead, they validate the person’s feelings and engage with the conversation in a supportive manner, often referred to as entering their reality.
3. Ignore Non-Verbal Communication
Many people with dementia may struggle to articulate their needs verbally, especially as the condition progresses. Dementia experts pay close attention to facial expressions, body language, and tone of voice. Ignoring these cues could mean missing signs of discomfort, pain, or distress. They strive to interpret and respond to these signals effectively.
4. Overwhelm with Too Many Choices
Providing too many options can confuse or frustrate someone with dementia. Instead of asking open-ended questions like, “What would you like for lunch?” experts might offer two clear choices: “Would you like a sandwich or soup?” This simplifies decision-making and reduces anxiety.
5. Use Infantilizing Language or Tone
Dementia experts never talk down to adults as if they were children. Patronizing phrases like “Good job!” in a sing-song voice can be demeaning. They always aim to communicate respectfully and treat individuals with dignity, regardless of their cognitive abilities.
6. Neglect the Environment’s Impact
An overstimulating or unsafe environment can worsen confusion and agitation in people with dementia. Experts ensure the environment is calm, predictable, and free of unnecessary clutter or noise. They also adapt lighting, colors, and signage to make navigation easier and more intuitive.
7. Forget About Self-Care
Dementia experts understand the toll caregiving can take and prioritize their own mental and physical well-being. Burnout not only affects the caregiver but can also impact the quality of care they provide. They emphasize the importance of seeking support, taking breaks, and staying informed to better handle the challenges of dementia care.
Final Thoughts
Supporting someone with dementia is a journey that requires empathy, adaptability, and continuous learning. By avoiding these common pitfalls, caregivers can create a more positive, dignified, and supportive environment for their loved ones. Whether you’re a professional caregiver or a family member, adopting these practices can make a world of difference.